Useful resources

The PPIE team, along with our RUG members, have produced a number of guides and glossaries to help members understand any research terms or jargon that may arise whilst they are involved in any research project. Please feel free to take a look around, all these resources are freely available to use. 

We co-produced this general glossary and project-specific glossaries to help members understand any research terms or jargon that may arise whilst they are involved in research projects. 

The Glossary is a plain language glossary of research terms and acronyms to assist the involvement of members of the public in research studies. The terms and acronyms used in research can be confusing to a lay-member who is actively working in partnership with researchers, and a glossary can help a lay-person to better understand and support their contribution to the research process.

 

The PPIE team have developed a number of guides to help and support both researchers and RUG members, providing an introduction to a large range of processes and methods - all of which are freely available to use. 

 

The PPIE team have developed a number of guides to help and support both researchers and RUG members, providing an introduction to a large range of processes and methods - all of which are freely available to use. 

Many of our members have links with many research and patient organisations which we've tried to provide below;

  • Versus Arthritis  - Invests in breakthrough treatments, the best information and vital support for everyone affected by arthritis.
  • NICE - National Institute for Health and Care Excellence - evidence search provides access to selected and authoritative evidence in health, social care and public health.
  • ARMA - The Arthritis and Musculoskeletal Alliance - Haywood
  • Stoke ARMA brings together patients, patient groups & health professionals to work to improve local musculoskeletal services. Meetings take place in the Lecture Room at the Haywood Hospital from 1.00 - 4.30pm with lunch provided. 
  • ‌National Institute for Health Research - Patients, carers, and the public are essential to our work. You are our greatest strength and we could not do our work without your help. More people than ever before are taking part in research studies. New and better treatments and services become available because people take part in our research. Members of the public are also getting involved in advising us about what research should be funded and helping to design research studies. These pages will give you an overview of the different ways in which you can get involved in research. 
  • Diabetes UK - Specialist information and advice on all aspects of living with diabetes.
  • Breathe Easy - Make new friends who know what you're going through, and learn more about living with a lung condition. Meetings take place the 1st Friday of every month at 1.30-3.30pm at the Central Library, Bethesda Street, Hanley, Stoke-on-Trent, ST1 3RS. Call 03000 030 555 for more information.