Patient and Public Involvement and Engagement

Original video:

Why do we involve patients and the public in research?

Patient and Public Involvement and Engagement

Why do we involve patients in research?

Health research focuses on improving the health and well-being of anyone with a physical or mental health condition.

It is vital that we listen to the very people who live with these conditions on a daily basis.

Involving patients in my research makes it more relevant, patient-focused, and more likely to have a sustained impact on improving healthcare.

Welcome to our Patient and Public Involvement meeting!

Patients should be involved in the whole of the research cycle.

For example, they have helped me to identify and prioritize research.

I need to know how I can look after myself.

I wonder which groups of patients would benefit most from that treatment.

They have helped me to shape research aims and study designs.

I think patients would want to see a doctor face to face.

Maybe a text message reminder would be a good idea!

They have fed back on study documentation.

I don't understand what these acronyms mean?

It would take me too long to fill this out, especially when I am in pain.

They have monitored study progress.

They have helped with interpreting findings.

And they've helped spread the word about research findings.

Patients should be at the heart of research.

I have experience of being a patient that I can share.

Maybe it will help improve care for people like me.

Maybe I can make a difference!

Patient & Public Involvement & Engagement

"Expertise by experience"