Dr Steven Blackburn

Title: Research Fellow - Patient and Public Involvement and Engagement
Regional Lead for Public Involvement in Research, NIHR Research Design Service
Phone: +44 (0) 1782 734846
Email: s.blackburn@keele.ac.uk
Location: DJW 0.55
Role: As above
Contacting me: Via email

In his role with the Research Design Service, Steven provides methodological expertise for Patient and Public Involvement and Engagement (PPIE) in research for the West Midlands region, including the iPCHS and Faculty of Medicine and Health Sciences, Keele University. As the lead of the iPCHS’ Patient and Public Involvement and Engagement team, he provides overall management and leadership for PPIE design and delivery in the Institute. Steven is the international lead for PPIE on implementation projects in the iPCHS’ Impact Accelerator Unit. He has a regional and national lead role for public involvement with NIHR INVOLVE and the Research Design Service.

Steven also leads the #KeeleINSPIRE initiative - Implementing the New Standards for Public Involvement in Research Environments. Keele has been chosen as one of the ten test beds in the UK to test the standards over the course of 12 months, from April 2018 to April 2019.

Steven’s research studies include the SPCR funded study, ' Understanding the costs and consequences of patient and public involvement in Primary Care research', and Arthritis Research UK funded ‘Empowering patients in their musculoskeletal care using the Musculoskeletal Health Questionnaire (MSK-HQ): The Joint Agenda Study”. Steven is a member of the RI’s Musculoskeletal Services and Outcomes research group and my research interests are the impact of PPI in research, patient-reported outcome measures, health technologies. 

Funding Awards

Apr 2017 -  Arthritis Research UK (Grant 21405). Implementing the MSK-HQ to empower patients and improve services (CI: Jonathan Hill) £270,418.42. Co-applicant

Feb 2017 - Keele University Innovation Fund. 'Student-Link': developing a new pathway to engage ethnic minority populations in patient and public involvement and engagement in research. (CI: Athula Sumathipala) £1000. Co-applicant

Jan 2017 - Arthritis Research UK (Grant 21405). Getting sustainable, person-centred musculoskeletal health intelligence from primary care electronic health record linkage and modelling: the PRELIM initiative (CI: Ross Wilkie) £297,833.83. Co-applicant

Oct 2015 - The Health Foundation (Grant No. 2216). Optimisation of adrenal incidentaloma patient management pathway using a novel IT Management System. (CI: Dr Fahmy Hanna). £74,996. Co-applicant

Dec 2015 - NIHR Research for Patient Benefit research grant (PB-PG-1014-35049). Back pain prevention in multiple myeloma using an external spinal brace - a feasibility study. (Ci: Mr Sandeep Konduru) £218,006. Co-applicant

May 2015 - Travel grant to attend EULAR 2015 Congress, €350

Jan 2014 - Highly Commended Award in the Journal of Assistive Technology’s 2013 Awards for Excellence for Brownsell, S., Blackburn, S., & Hawley, M. (2012). User requirements for an ICT-based system to provide care, support and information access for older people in the community. Journal of Assistive Technologies, 6(1), 5-23.

Selected Publications

  • Higginbottom A, Blackburn S, Campbell L, Rhodes C, Taylor R, Machin A, Hider S, Roddy E, Chew-Graham CA, Dziedzic K. 2017. CELEBRATING TEN YEARS OF SUCCESSFUL PATIENT INVOLVEMENT IN RESEARCH OF INFLAMMATORY CONDITIONS. ANNALS OF THE RHEUMATIC DISEASES (vol. 76, p. 1551). link> doi>
  • Blackburn S, Meesters J, De Wit M, Campbell L, Rhodes C, Schiphof D, Vlieland TV, Bierma-Zeinstra S, Osteras N, Pais S, Roos E, Evans N, Dziedzic K. 2017. IMPROVING CARE FOR PATIENTS WITH OSTEOARTHRITIS IN FIVE EUROPEAN COUNTRIES: THE JIGSAW-E PATIENT PANEL. ANNALS OF THE RHEUMATIC DISEASES (vol. 76, pp. 1343-1344). link> doi>
  • Blackburn SJ. 2017. Patient involvement vs. patient participation in qualitative research in the development of PROMs. Health Expectations, vol. 20(3), 371-372. doi> link> full text>
  • Hill J, Kang S, Benedetto E, Myers H, Blackburn S, Smith S, Dunn KM, Hay E, Rees J, Beard D, Glyn-Jones S, Barker K, Churchman D, Ellis B, Fitzpatrick R, Price A. 2016. DEVELOPMENT OF THE MUSCULOSKELETAL HEALTH QUESTIONNAIRE (MSK-HQ) FOR USE IN DIFFERENT CONDITIONS AND DIFFERENT HEALTHCARE PATHWAYS. VALUE IN HEALTH (vol. 19, p. A544). link> doi>
  • Hill JC, Kang S, Benedetto E, Myers H, Blackburn S, Smith S, Dunn K, Hay E, Rees J, Beard D, Glyn-Jones S, Barker K, Churchman D, Ellis B, Fitzpatrick R, Price A. 2016. PMS74 - Development of the Musculoskeletal Health Questionnaire (MSK-HQ) for Use in Different Conditions and Different Healthcare Pathways. Value in Health, vol. 19(7), 544. doi> link> full text>

Full Publications List show

Journal Articles

  • Blackburn SJ. 2017. Patient involvement vs. patient participation in qualitative research in the development of PROMs. Health Expectations, vol. 20(3), 371-372. doi> link> full text>
  • Hill JC, Kang S, Benedetto E, Myers H, Blackburn S, Smith S, Dunn K, Hay E, Rees J, Beard D, Glyn-Jones S, Barker K, Churchman D, Ellis B, Fitzpatrick R, Price A. 2016. PMS74 - Development of the Musculoskeletal Health Questionnaire (MSK-HQ) for Use in Different Conditions and Different Healthcare Pathways. Value in Health, vol. 19(7), 544. doi> link> full text>
  • Blackburn S, Higginbottom A, Taylor R, Bird J, Østerås N, Hagen KB, Edwards JJ, Jordan KP, Jinks C, Dziedzic K. 2016. Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care. Res Involv Engagem, vol. 2, 5. link> doi> full text>
  • Jinks C, Carter P, Rhodes C, Taylor R, Beech R, Dziedzic K, Blackburn S, Hughes R, Ong BN. 2016. Patient and public involvement in primary care research - an example of ensuring its sustainability. Res Involv Engagem, vol. 2, 1. link> doi> full text>
  • Jinks C, Carter P, Rhodes C, Beech R, Dziedzic K, Hughes R, Blackburn S, Ong BN. 2013. Sustaining patient and public involvement in research: A case study of a research centre. J Care Serv Manag, vol. 7(4), 146-154. link> doi> full text>
  • Ward AB, Chen C, Norrving B, Gillard P, Walker MF, Blackburn S, Holloway L, Brainin M, Philp I, Global Stroke Community Advisory Panel (GSCAP). 2014. Evaluation of the Post Stroke Checklist: a pilot study in the United Kingdom and Singapore. Int J Stroke, vol. 9 Suppl A100, 76-84. link> doi>
  • Blackburn S, Humphrey L, Scott JA. 2013. Development and content validation of a new patient questionnaire for studies in patients with chronic hepatitis C virus (HCV): the HCV Symptom and Impact Questionnaire (HCV-SIQv3). QUALITY OF LIFE RESEARCH, vol. 22. link>
  • Scott J, Rosa K, Fu M, Cerri K, Peeters M, Beumont-Mauviel M, Gilles L, Blackburn S. 2013. FATIGUE SEVERITY SCALE: RELIABILITY, VALIDITY AND INTERPRETATION OF CHANGE - EVIDENCE FROM TWO CLINICAL TRIALS IN PATIENTS WITH CHRONIC HCV INFECTION. VALUE IN HEALTH, vol. 16(3), A216. link> doi>
  • Blackburn S, McCool R, Panter C, Young V, Peterson S, Mitchell L, Machouf N, Scott J, Humphrey L. 2013. INTERVIEWS WITH PATIENTS WITH CHRONIC HEPATITIS C (CHC) VIRUS INFECTION DOCUMENT UNMET NEEDS, CONTENT VALIDITY, AND COMPREHENSION OF PROS FOR CLINICAL TRIALS. VALUE IN HEALTH, vol. 16(3), A6. link> doi>
  • Humphrey L, Kulich K, Deschaseaux C, Blackburn S, Maguire L, Strömberg A. 2013. The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity. Health Qual Life Outcomes, vol. 11, 84. link> doi> full text>
  • Blackburn S, Humphrey L, Maguire L, Deschaseaux C, Stromberg A. 2013. The burden of caregiving in chronic heart failure: a qualitative study. EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, vol. 12, S6. link>
  • Blackburn S, Humphrey L, Maguire L, Deschaseaux C, Stromberg A. 2012. A NOVEL CONCEPTUAL MODEL OF CAREGIVER BURDEN IN CHRONIC HEART FAILURE: A QUALITATIVE STUDY. VALUE IN HEALTH, vol. 15(7), A378. link> doi>
  • Blackburn SJ. 2012. A discussion of systematic user requirements gathering from a population who require assistive technology. Technology and Disability, vol. 24(3), 193-204. doi> link>
  • Brownsell S, Bradley D, Blackburn S, Cardinaux F, Hawley MS. 2011. A systematic review of lifestyle monitoring technologies. Journal of telemedicine and telecare, vol. 17(4), 185-189. doi>
  • Brownsell S, Bradley D, Blackburn S, Cardinaux F, Hawley MS. 2011. A systematic review of lifestyle monitoring technologies. J Telemed Telecare, vol. 17(4), 185-189. link> doi>
  • Blackburn S, Brownsell S, Hawley MS. 2011. A systematic review of digital interactive television systems and their applications in the health and social care fields. J Telemed Telecare, vol. 17(4), 168-176. link> doi>
  • Brownsell S, Blackburn S, Hawley MS. 2008. An evaluation of second and third generation telecare services in older people's housing. J Telemed Telecare, vol. 14(1), 8-12. link> doi>
  • Blackburn S, McLachlan S, Jowett S, Kinghorn P, Gill P, Higginbottom A, Rhodes C, Stevenson F, Jinks C. 2018. The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study. Res Involv Engagem, vol. 4, 16. link> doi> full text>

Other

  • Higginbottom A, Blackburn S, Campbell L, Rhodes C, Taylor R, Machin A, Hider S, Roddy E, Chew-Graham CA, Dziedzic K. 2017. CELEBRATING TEN YEARS OF SUCCESSFUL PATIENT INVOLVEMENT IN RESEARCH OF INFLAMMATORY CONDITIONS. ANNALS OF THE RHEUMATIC DISEASES (vol. 76, p. 1551). link> doi>
  • Blackburn S, Meesters J, De Wit M, Campbell L, Rhodes C, Schiphof D, Vlieland TV, Bierma-Zeinstra S, Osteras N, Pais S, Roos E, Evans N, Dziedzic K. 2017. IMPROVING CARE FOR PATIENTS WITH OSTEOARTHRITIS IN FIVE EUROPEAN COUNTRIES: THE JIGSAW-E PATIENT PANEL. ANNALS OF THE RHEUMATIC DISEASES (vol. 76, pp. 1343-1344). link> doi>
  • Hill J, Kang S, Benedetto E, Myers H, Blackburn S, Smith S, Dunn KM, Hay E, Rees J, Beard D, Glyn-Jones S, Barker K, Churchman D, Ellis B, Fitzpatrick R, Price A. 2016. DEVELOPMENT OF THE MUSCULOSKELETAL HEALTH QUESTIONNAIRE (MSK-HQ) FOR USE IN DIFFERENT CONDITIONS AND DIFFERENT HEALTHCARE PATHWAYS. VALUE IN HEALTH (vol. 19, p. A544). link> doi>
  • Blackburn S, Rhodes C, Higginbottom A, Dziedzic K, Grp RU. 2016. THE OARSI STANDARDISED DEFINITION OF OSTEOARTHRITIS: A LAY VERSION. OSTEOARTHRITIS AND CARTILAGE (vol. 24, p. S192). link> doi> full text>
  • Taylor R, Blackburn S, Higginbottom A, Rhodes C, Dziedzic K. 2015. DEMYSTIFYING RESEARCH JARGON: A VOLUNTEER LED GLOSSARY. ANNALS OF THE RHEUMATIC DISEASES (vol. 74, p. 1362). link>
  • Higginbottom A, Jinks C, Bird J, Rhodes C, Blackburn S, Dziedzic K. 2015. FROM DESIGN TO IMPLEMENTATION - PATIENT AND PUBLIC INVOLVEMENT IN AN NIHR RESEARCH PROGRAMME IN OSTEOARTHRITIS IN PRIMARY CARE. ANNALS OF THE RHEUMATIC DISEASES (vol. 74, p. 69). link> doi>
  • Blackburn S, Stevenson K, Somerville S, Duffy H, Hughes R, Dziedzic K. 2015. IMPROVING THE ROUTINE CARE OF PATIENTS WITH BACK PAIN: THE ROLE OF PUBLIC INVOLVEMENT IN TAKING SUCCESSFUL RESEARCH INTO CLINICAL PRACTICE. ANNALS OF THE RHEUMATIC DISEASES (vol. 74, p. 122). link> doi>
  • Blackburn SJ, Osteras N, Hagen KB, Edwards JJ, Jordan KP, Higginbottom A, Dziedzic KS. 2014. PATIENTS AND RESEARCHERS SOMETIMES THINK ALIKE: PATIENT INVOLVEMENT IN THE DEVELOPMENT OF QUALITY INDICATORS FOR OSTEOARTHRITIS CARE. ANNALS OF THE RHEUMATIC DISEASES (vol. 73, p. 155). link> doi>
  • Blackburn S, Humphrey L, Maguire L, Deschasaux C, Stromberg A. 2012. The Caregiver Burden Questionnaire for Chronic Heart Failure (CBQ-CHF): Development and Validation. JOURNAL OF CARDIAC FAILURE (vol. 18, p. S83). link> doi>

Feb 2017 - current - Prof Doc Health (School of Nursing): Module on PPIE in research

Jan 2015 - current -  Tutor, Evidence-Based Medicine – Randomised Controlled Trials and Meta-analysis course to Year 3 Medical students, Keele Medical School, Keele University 

Activities

Keele

Sep 2017 - Member of Keele’s SEEK-PER Public Engagement Steering Group

Jan 2017 - Member of the Faculty of Health and Medicine Research Excellence Framework (REF) Impact Working Group, as advisor on Patient Engagement.

Nov 2013 - Member of Keele University Faculty of Health User and Carer Liaison Group

 

External

Sept 2018 - Chair of the RDS National Public Involvement Community

Jun 2017 - Founder member of Founder member of the European League Against Rheumatism (EULAR) Study Group for Participatory Research

May 2017 - Member of the Public Involvement Standard Network (Public Involvement Standards Development Partnership)

Apr 2017 - Deputy Chair of the UKCRC Patient and Public Involvement and Engagement Task & Finish Group    

Nov 2015 - Member of NIHR INVOLVE Public Involvement Leads’ National Group

Sep 2014  -Member of the University Hospitals of North Midlands PPI Steering Group

Jan 2014  -Founder member and Coordinator of Public Involvement and Lay Accountability in Research (PILAR) regional strategic forum.